home *** CD-ROM | disk | FTP | other *** search
- $Unique_ID{BRK00113}
- $Pretitle{}
- $Title{Huntington's Disease Society}
- $Subject{Huntington's Disease Society Resources Resource Huntington Diseases
- Chorea genetic mental emotional condition conditions}
- $Volume{Z-0}
- $Log{}
-
- Copyright (c) 1991-92,1993 Tribune Media Service, Inc.
-
-
- A Resource About Huntington's Disease Society
-
-
- ------------------------------------------------------------------------------
-
- It is obvious from the answer above that Huntington's Chorea can be a
- real tragedy, not only for the patient, but for the family of the patient as
- well. Though a rare disease that strikes about 3-4 individuals per million,
- the possibility of passing it on to children, before it strikes the patient
- marked for the disease, causes anxiety to the extended families as well, who
- frequently can find no resources for help, direction and information. But, as
- for many other diseases, such an organization does exist and is prepared to
- offer a wide variety of important services to those who are in need of them.
- Its the Huntington's Disease Society of America, 140 West 22 Street, New York,
- NY 10011, and can be reached on its National Hot Line at 1-800-345-HDSA (in
- New York State call 212-242-1968) You may request a packet of information
- about Huntington's disease which is free for the asking, be placed on the
- mailing list for their Newsletter, which features the latest breakthrough and
- information concerning the disease, and placed in contact with a local chapter
- close to you. But of the services offered, perhaps the most important is
- their referral services. The genetic marker test is a difficult one to
- perform, and is not generally available. Special techniques are required to
- assure the accuracy of the test, and there are some neurologists who have
- gained considerable experience with it, and who cooperate with the Society, in
- aiding patients. You can obtain their names, as well as all the items I've
- mentioned by contacting the Society directly.
-
- ----------------
-
- The material contained here is "FOR INFORMATION ONLY" and should not replace
- the counsel and advice of your personal physician. Promptly consulting your
- doctor is the best path to a quick and successful resolution of any medical
- problem.
-
-